patient advocacy
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A 26-Year-Old Found a Lump and Faced Skepticism. Then Came the Diagnosis
Andrea de Armas faced initial skepticism over a breast lump at age 26, leading to a cancer diagnosis just before starting physician assistant school.
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Dublin Protest Calls for HSE Approval of Rare Disease Medication
Patients and families are protesting in Dublin, urging the HSE to reverse a recommendation against funding Skyclarys for Friedreich’s ataxia.
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Rare Guillain-Barré Variant Leaves Woman Fighting for Life
A rare Guillain-Barré syndrome variant left Vanessa Abraham paralyzed and in the ICU for weeks. Her journey highlights the challenges of diagnosing rare diseases.